For a couple of years, G does not sit at the breakfast nook. Something about the way the cushions move, or how high the benches are – he doesn’t want to sit here. Even though his legs are so long now, and so close to the floor at the edge of a cushion, he is …
Here goes our 21 days of prescription Nystatin anti-fungal liquid. Still looking for the next one thing that might make a very noticeable change and unlock another door for G. Day 1: 2/18/20: G started Nystatin 3 times a day Through the next few days he started putting his his head upside down on the …
This feels a little off topic, but a family has to be healthy to keep the kids healthy, right? Lately, meal prep has been what we do to make sure we do not over indulge during the day or night. Plus we are now eating a bigger variety of vegetables than ever. Now if only …
A year ago today, I was pretty down. This is the post I wrote where I mentioned how G was scratching us, sleeping poorly, among other things. While no big miracles happened with his stem cell injection, or any of his supplements (or the break we had from them all), I am happy that we …
January turned out to be a difficult month. I wouldn’t say it was bad, or hard – just difficult. G started wearing the foot orthotics in the first week of January. He eased into it but then started wearing them all day while at therapy. I really didn’t think they bothered him. He would even …
Tomorrow is your birthday. You are a positively sweet, snuggly, smart and stubborn guy. There is no one like you on this earth. I look back at the last five years with so many different feelings. My biggest feeling is that I am proud of how hard you work to learn and to manage your …
I signed up my oldest son for a clinical trial for his myopia in June of 2019. I have learned a lot since then about myopia, a sulfate called atropine that is derived from the belladonna plant, and the history of it all. What’s myopia? It’s nearsightedness: one of the most common eyesight problems. For …
I haven’t wrote here since June. That feels like a lifetime ago now. My mom died in July. Then the other months just tick tocked along the line. My oldest son and I just got back from a long visit with my dad. My eyes are still puffy and vision is blurry as I look …
People are worried about babies under 1 eating honey – I mean, they yell NO, NO, NO HONEY! But having multiple vaccines every month or two when you’ve barely been out of the womb seems like a piece of cake compared to eating a sticky gel made by insects? I have a lot in mind …
When I was having my first son, L, I was asked to sign some paper to donate my cord blood. It’s all a blur really. They may have mentioned that I could bank the cord blood in case we needed it later. I considered at the time that cord blood was for “diseases” and “serious …