Why I Unsubscribed from Autism News and Alerts

Today was the day. I just couldn’t see this subject in my inbox anymore. For exactly one year now, I had Google alerts set up for autism and a few other search terms relating to it. I also signed up for some newsletters, one being from the Autism Research Institute. I unsubscribed from them all today. I just need a break. Every single day I was looking through all of the news and bits of info about autism that I could handle. Until maybe I just couldn’t handle it anymore lately. The sadness from reading about how many kids are affected now, and the talk of research, research, research and ideas, ideas, ideas – yet parents can’t find doctors easily who know how to help their kids. We go through so much searching and trial and error, almost as if we have permanent blindfolds on.

I read a quote yesterday that felt exceptionally real. It was in a post in a Facebook group about trying to find the right diet, therapies and other interventions for autism and how every child reacts to changes differently.

“Healing autism is like fiddling with three dials on a radio in the dark. You don’t know what the dials are for or even what you are trying to do. But when you hit the dials just right, suddenly you hear music.”

So for the next six months, I promise myself to relax. Gavin is doing well in therapy, he is showing us new behaviors and interesting things every week. And we will be doing our first stem cell injection in April. If we hit another roadblock after that, then I’ll jump back into research.

But for now, we will continue what we have been doing and push through. We’ll focus on making Gavin listen, look and laugh. And taking him and Liam on adventures in the spring and through the summer will be the best. And we’ll be okay.

Leave a Reply